20 Reasons to Participate in World Hemophilia Day this Year:
参与今年世界血友病日的20个理由：

1. Raise awareness of bleeding disorders in your community.
1.提高社会对出血性疾病的认知。

2. Support your patient group or local chapter.
2. 支持病人团体或当地血友病组织。

3. Educate new patients and their families.
3. 教育新的病人及其家属。

4. Lobby government officials about improving care for people with hemophilia and other bleeding disorders.
4. 说服政府官员提高对血友病和其它出血性疾病病人的关怀水平。

5. Attract more volunteers to your cause.
5. 吸引更多的志愿者加入到你们的行列。

6. Raise funds to support your activities.
6. 筹集资金以支持你们的活动。

7. Get more attention for your event.
7. 提高你们活动的关注度。

8. Provide an interesting angle to get the media’s attention.
8. 为媒体提供一个他们感兴趣的角度，引起他们的关注。

9. Participate in our global caring community.
9. 参与我们全球关怀社团的活动

10. Support your hemophilia treatment centre and comprehensive care team.
10. 支持你们的血友病治疗中心和综合治疗团队。

11. Highlight the importance of proper care for people with bleeding disorders.
11. 强调对出血性疾病患者进行适当护理的重要性。

12. Help protect comprehensive care in areas where it is successful.
12. 帮助保护已在综合治疗方面取得成功的地区。

13. Educate the next generation: talk to youth about what it was like before comprehensive care and safe, effective treatment were available.
13. 教育下一代：告诉他们在综合治疗以及有安全有效的治疗之前是什么样子。

14. Thank your comprehensive care team.
14. 感谢综合治疗的团队。

15. Spread the word about the global needs for people with bleeding disorders in developing countries.
15. 对于发展中国家出血性疾病患者的全球性需求，进行广泛传播。

16. Support the WFH and its vision of Treatment for All.
16. 支持世界血友病联盟“人人享有治疗”的愿景。

17. Adapt the World Hemophilia Day theme to further your own needs.
17. 调整世界血友病日的主题以发展你们自己的需求。

18. Inform key audiences of the importance of coordinated multidisciplinary healthcare programs for people with inherited bleeding disorders.
18. 告知主要人群对于遗传性出血性疾病患者进行多学科健康关怀协作的重要性。

19. Broaden attention beyond your own community to the general public.
19. 将关注视野从自己的圈子扩大到公众。

20. Celebrate 20 years of World Hemophilia Day.
20. 庆祝世界血友病日20年。

Suggested Activities for World Hemophilia Day 2009
2009世界血友病日推荐活动

? Write an article or letter to the editor for your local newspaper on bleeding disorders and the importance of comprehensive care. Include information on how patients with hemophilia have to have all their needs addressed. Refer to the media
backgrounder and use the World Federation of Hemophilia’s template press release as a starting point.
就出血性疾病及综合治疗的重要性，撰写文章或书信给你当地报纸的编辑。包括血友病病人的所有需求等信息。参考媒体记者招待会并使用WFH提供的媒体新闻稿模板做为起始点。

? Plan a family day where workshops are given to key healthcare providers on the
importance of multidisciplinary comprehensive care. Encourage patients and family
members to visit their hemophilia treatment centre regularly.
举办一个医患联谊会，对重要的医护人员就多学科综合治疗的重要性进行培训。鼓励病人和家属要定期去当地的血友病治疗中心。

? Organize a forum that involves one speaker from each key healthcare group. Base the discussion on “Sharing Best Practices in Comprehensive Care”. Invite
government officials, patients, families, and all key stakeholder groups to hear how
each group is important in the comprehensive care process.
组织一次论坛，每个主要的综合治疗组都出一名演讲者，就“综合治疗经验分享”的话题进行讨论。邀请政府官员、病人、家属和所有重要的相关人员来倾听在综合治疗的过程中每个组成部分都是多么的重要。

? Organize a panel discussion where patients can ask questions of a ultidisciplinary team.
进行分组讨论，病人可以向多学科治疗团队提问。

? Organize a walk-a-thon or another event to raise awareness of bleeding disorders in your community. Emphasize this year’s key message of comprehensive care being the best option for people with bleeding disorders.
组织一场“长走”运动或其它活动，提高公众对出血性疾病的认识。宣传综合治疗对出血性疾病患者来说是最好的选择，这样一种重要观念。

? Invite healthcare workers that are not normally involved with your organization to
your event (for example, occupational therapists, rheumatologists, etc). This will
open up lines of communication between your organization and important groups of healthcare providers.
邀请一些平时很少接触你们组织的医护工作者（例如：职业医学工作者、风湿病专家等）来参加活动。这一活动将推进你的组织与重要的医护人员之间的一系列沟通。

? Organize a meeting with treatment centres to discuss ways to improve
comprehensive care. This could be the first step in working towards developing this type of care approach.
组织与治疗中心的见面会，讨论提高综合治疗的方法。这是共同发展综合治疗这一形式的第一步。

? Request success stories from your members or patients of how comprehensive care has improved their lives. Share these stories with media that you have contacted for World Hemophilia Day. Include these stories in your newsletter or on your website. Share them with the WFH.
在你们组织的成员或病人当中寻找到综合治疗提高他们生活质量的成功案例，然后为庆祝世界血友病日联系媒体，在媒体上分享他们的故事。把这些故事发布到你们组织的杂志或网站上，并分享给世界血友病联盟。

? Visit www.wfh.org on April 17 to view our video on comprehensive care.
For more materials, visit www.wfh.org.

在四月十七日访问www.wfh.org观看关于综合治疗的视频。更多资料请访问www.wfh.org